Stargardt disease

In the news, mention of a woman with the same eye disease I have. It's rare, so I was interested. She is using eSight glasses to see her newborn baby ... Legally Blind Mom Sees Newborn for First Time Through Special Glasses. This is nice, of course, but also disappointing because the glasses can only help so much: they are like the personally wearable high tech (and very expensive) version of me making the computer screen background gray, making all the fonts huge, and lowering the brightness ... it helps me see what's on the screen better, but it doesn't make my vision normal and there's still stuff I cannot see.